Squeets' forum posts

Avatar image for Squeets
Squeets

8185

Forum Posts

0

Wiki Points

34

Followers

Reviews: 3

User Lists: 0

#1  Edited By Squeets
Member since 2006 • 8185 Posts

@adders99 said:

Never say never my friend! there are plenty of avenues you can try to start to become more of a social person. You mention that you have cancer, is there any cancer support groups you could go to? This not only would be a good social situation but you would be able to get support from others and have something in common, to which you could talk about your experiences etc.

I no longer have cancer, I have been cancer free since just before I was two years old. All I have now are the long term side effects of dosing a one year old baby with radiation and chemotherapy for close to eleven months.

EDIT: And if you are wondering how cancer/treatment as an infant relates to becoming confined to a wheelchair at 10, the cancer itself and the radiation treatment caused a lot of damage to the bone of my pelvis and femurs, especially on my right side. With time osteonecrosis set in and the bone continued to decay to the point where the top of my right femur had almost completely dissolved.

Avatar image for Squeets
Squeets

8185

Forum Posts

0

Wiki Points

34

Followers

Reviews: 3

User Lists: 0

#2 Squeets
Member since 2006 • 8185 Posts

@MirkoS77 said:

My advice would be to join some groups, or volunteer. Helps me. For a profession, what's your education? What do you enjoy?

Thanks for the advice and for relating your own situation.

I am 23 right now and have a BA (double major of history and political science), I also graduated with honors. I had always been interested in such subjects and assumed I would go to law school after graduating but that is not going to happen.

As for what I enjoy, I can't think of anything. I am not really looking for a job I enjoy, simply a job I can actually get and make a living wage with.

Once again thanks.

Avatar image for Squeets
Squeets

8185

Forum Posts

0

Wiki Points

34

Followers

Reviews: 3

User Lists: 0

#3 Squeets
Member since 2006 • 8185 Posts

I made a thread before describing my disability and some people offered advice with regard to the issue at hand in that thread which was helpful at the time. Just wanted to ask for a little more advice on that subject.

In addition to being crippled and in a wheelchair, my entire life up to now has been marked by social rejection. When I was first forced into my wheelchair, the kids I grew up with didn't care much since they had always known me. Shortly after being confined to the chair, however, my family moved and my situation didn't go over so well socially speaking. No one in my new school wanted me around, no one wanted to know me, etc... I didn't care much at the time because I was 10, but that trend continued all through school; by the time I graduated high school I had no friends, I was excluded from everything, made fun of by many, etc...

This trend continued in college... No one wanted me around as being with me was embarrassing for them. Working with people in groups was awkward because I didn't have anything to talk about with them, etc.

This is all on top of the fact that my cancer (the treatment for it) destroyed my sex organs, so not only can I never father children, I can't even have sex. So as far as I can tell for my future, I can and never will be social and I can and never will have a significant other; nor do I have a reason to since nothing can come of any of it. All of that has led to me becoming rather bitter and I avoid social interaction where possible at this point and I am not receptive to the few people who actually make an effort to be nice. My prospects for finding employment are weak as well since any job is a social job at this point, and the importance of interviews and what not are higher than ever. I did very well in school, but that is rather irrelevant it seems.

So my outlook on life is pretty grim.

With all of that in mind, just curious if anyone could offer any advice on perhaps fields of work crippled asocial people with no social aspirations would thrive in? I am not looking to get rich or anything of that sort, just looking to make enough money to live alone comfortably until I succumb to my disabilities.

Thank you.

Avatar image for Squeets
Squeets

8185

Forum Posts

0

Wiki Points

34

Followers

Reviews: 3

User Lists: 0

#4 Squeets
Member since 2006 • 8185 Posts

@PSP107 said:

@Squeets said:

@Wilfred_Owen said:

So why are you in a wheel chair?

Cancer as an infant. The radiation therapy destroyed a lot and my right hip/pelvis area got the brunt of it. My right femur head is almost completely dissolved and my right hip socket is smoothed over, so no surgery can correct the issue (at least so far as multiple doctors have told me). The bones are only one issue though, the treatment caused a myriad of other medical problems as well.

Did you sue?

Sue them for keeping me alive? No. It isn't their fault... Cancer treatment wasn't as refined then as it is now, especially in infants. And it was either that or I died.

Avatar image for Squeets
Squeets

8185

Forum Posts

0

Wiki Points

34

Followers

Reviews: 3

User Lists: 0

#5  Edited By Squeets
Member since 2006 • 8185 Posts

@Wilfred_Owen said:

So why are you in a wheel chair?

Cancer as an infant. The radiation therapy destroyed a lot and my right hip/pelvis area got the brunt of it. My right femur head is almost completely dissolved and my right hip socket is smoothed over, so no surgery can correct the issue (at least so far as multiple doctors have told me). The bones are only one issue though, the treatment caused a myriad of other medical problems as well.

This is an x-ray from a few years ago when I was seeing a doctor about a possible full hip replacement/reconstruction. The two pins shown are what is left of a large number of screws/pins/plates that used to be there, which were removed to get accurate 3d scans of the hip. As I said before, the ball of the femur and most of the rest of the head are completely gone, the socket is flat and no longer a socket. No doctor is willing to even attempt a surgery on the region.

This is the left side, for comparison... Although it looks much better, it is still very messed up as well. If you look at the brightness of the bones in each, you can see how thin/decayed the bone in the right side is.

EDIT: To elaborate further... Standing is extremely painful. My leg muscles have atrophied significantly. Those are both in addition to the constant pain from nerve damage.

Avatar image for Squeets
Squeets

8185

Forum Posts

0

Wiki Points

34

Followers

Reviews: 3

User Lists: 0

#6 Squeets
Member since 2006 • 8185 Posts

@thegerg said:

Ask him, not us.

I don't want to hear his answer if it is yes.

Avatar image for Squeets
Squeets

8185

Forum Posts

0

Wiki Points

34

Followers

Reviews: 3

User Lists: 0

#7 Squeets
Member since 2006 • 8185 Posts

@jasean79 said:

@Squeets said:

@Master_Live said:

Ok, but you failed to tell us if you have ever asked your father for a car and what his respond to that question has been. Has he ever given you an specific reason for not providing you with a car?

I ask him every time I see him, he says no and does not elaborate. And by "every time I see him," I don't mean nagging... I see him like every other month as he works overseas and is home sparingly.

I have been asking him since I was in High School.

What about your mom? Can you go through her instead?

No, she does not have a lot of spare cash after her bills and what not.

@ad1x2 said:

Your dad may be frustrated with your disability, but that doesn't mean he hates you. You may want to discuss that with him. As for transportation, are you unable to drive a modified car made for people who are in wheelchairs? If not, does your father have a problem helping you finance such a vehicle? One thing about military bases is despite the fact that they are made to house and train people who absolutely cannot be handicapped in order to do their job, there are plenty of concessions made for the handicapped. Almost every building on most bases are ADA compliant because of retirees, spouses, and civilian employers who may need it.

I am able to drive a normal car with portable hand controls... I don't need special controls for a car outside of the rods for the gas pedals. Also I know military bases are handicap accessible and all of that... Accessibility was never an issue, simply getting to and from the base was the issue.

Avatar image for Squeets
Squeets

8185

Forum Posts

0

Wiki Points

34

Followers

Reviews: 3

User Lists: 0

#8 Squeets
Member since 2006 • 8185 Posts

@Master_Live said:

Ok, but you failed to tell us if you have ever asked your father for a car and what his respond to that question has been. Has he ever given you an specific reason for not providing you with a car?

I ask him every time I see him, he says no and does not elaborate. And by "every time I see him," I don't mean nagging... I see him like every other month as he works overseas and is home sparingly.

I have been asking him since I was in High School.

Avatar image for Squeets
Squeets

8185

Forum Posts

0

Wiki Points

34

Followers

Reviews: 3

User Lists: 0

#9  Edited By Squeets
Member since 2006 • 8185 Posts

Currently I am an unemployed 23 year old in a wheelchair. In December I graduated from college... I had a double major, I was a part of my university's honors program, and I graduated with undergraduate Latin-Honors because I maintained a 3.9+ GPA all four years.

Upon graduation, I received a job offer from a government agency (to work in another city/state), which I accepted. In the ensuing chaos I was forced to withdraw my acceptance because I was unable to obtain guaranteed transportation and housing. I don't have a car and the public transportation in the city wasn't able to 100% guarantee wheelchair accessible transportation every day (full time job and all), they said it was first come first served, took months to schedule subscription transportation, had a rigorous application process, and even then it was not certain if they could get me at the same times daily... Normal buses are handicap accessible, but the job was on a military base where only one bus line was allowed onto the base at very specific times in the day (outside of my work schedule) and even then, they couldn't tell me if the wheelchair places were available on that bus. My savings were limited so I couldn't very well sign a six month+ lease on an apartment without knowing I would be able to get to work.

Why I ask the question above of whether my father hates me or not is the fact that I need to use public transportation at all. I have two sisters... One is in her 30s and the other is my twin. My older sister got a car when she was in high school... Then she dropped out of her university and my dad bought her another car so she could drive to a community college, which she also dropped out of. As recently as a few years ago (in her late 20s), he signed the lease for her to get yet another car. My twin sister was flunked out of her university for bad grades and now goes to some community college as well... My father gave her my mother's old Suburban...

Then here I am, four years of college to graduate with a double major, honors, and a lifelong career handed to me on a silver platter... All of it thrown away because I can't get around.

Outside of the fact that I am crippled, I can think of no other reason why my father does this? He is not strapped for cash or anything like that... He makes quite a lot of money and a few months ago he bought a summer home... I don't argue with him, we have never fallen out, etc...

I am just at a loss at this point... As I said before, I have very little savings and my student loans entered repayment last month, $600 a month... I have only enough cash for a few months of that.

Thank you.

Avatar image for Squeets
Squeets

8185

Forum Posts

0

Wiki Points

34

Followers

Reviews: 3

User Lists: 0

#10 Squeets
Member since 2006 • 8185 Posts

Speaking of Star Trek... I loved Star Trek: Enterprise more than any of the other series. I also just cannot for the life of me get into TNG, Voyager, DS9... Too much 80s/90s cheese.

I hope they make a new series as well.